PARTICIPANTS NEEDED FOR ONLINE RESEARCH STUDY
Alexandra Carmichael, a scientist whose husband lives with mitral valve prolapse is conducting a study on MVP through the website she co-founded, CureTogether. Specifically, she is gathering self-reported data on symptoms, treatment, and triggers for MVP. Her goal is to discover associations in this data to help characterize which MVP treatment works better for patients with different groups of symptoms. With enough people, a genome-wide association study can also be conducted to locate any genes or genetic regions that are associated with MVP.
There are currently many people with MVP who have joined the CureTogether study at http://CureTogether.com/mitral-valve-prolapse. A genome-wide association study requires 1,500 patients, so at this time Alexandra is calling for people with MVP to join the study. Participation is entirely voluntary, anonymous, and completely confidential. It involves joining, the CureTogether study at the website provided, then checking off and rating symptoms and treatments. It should take 15-20 minutes to complete. Statistics for the study will be posted live, so you will be able to see them after completing your entry. You will also be notified when the genetic study is set to begin, with an option to participate or not.
About CureTogether, Alexandra, co-founder, helps people anonymously track and compare health data to better understand their bodies, make informed treatment decisions, and contribute data to research. If you are interested in learning more about the study, or to participate, please visit Curetogether.com. or email Alexandra@CureTogether.com Alexandra is currently an advisor on the Biotach Medical Board of the Lifeboat Foundation. Alexandra lives with a chronic condition herself.